Fighter would be the best adjective
to describe
now, 17
years old, Ashlyn Horry. Born April 2, 1994,
with severe respiratory issues and a host
of other complications requiring a six month
stay in Texas Childrens Hospital’s Neonatal
Intensive Care Unit, she has endured. After
numerous tests, multiple surgeries and several
near death experiences, Genetic Physicians
found that she had a rare chromosome abnormality;
partial deletion of her number 1 chromosome
(short arm). Not much information was known
at the time to have any frame of reference
or "road map" to go by. In fact, the abnormality
didn’t even have a name. In just recent
years, a name has been attached to this
chromosome abnormality. It is now known
as 1p36 Deletion Syndrome.
The Ashlyn Horry
Foundation is committed
in providing community
initiatives focusing
on youth disabilities
and caregivers while
providing resources
for development and
empowerment regardless
of economic status,
race, religion or creed.
1p36 deletion syndrome is a genetic condition that is caused by missing part of chromosome number 1. 
While individuals with this syndrome have facial features similar to their family members, they may also have the facial characteristics commonly seen in others with 1p36 deletion syndrome. 
Currently, there is no specific treatment or cure for this condition. The approach to the management of children with chromosome 1p36 deletions is similar to all children who have a complicated medical condition. 
- Acknowledgement - The Horry family would like to thank each of you for your prayers, thoughts, and support during this difficult time. We want to let you know that you are greatly appreciated. Please stay tuned for upcoming events as we continue to preserve Ashlyn's legacy.
